Western Australia’s Incapacity Companies has gone stay with a brand new web site that provides details about the well being issues of individuals with Down syndrome.
The My Voice My Well being web site was designed by Down Syndrome Western Australia by way of the funding supplied by the state’s Division of Communities.
The net useful resource hub has info on well being matters related to individuals with DS; lists of public well being suppliers, peak our bodies and non-profit organisations throughout WA that gives assist for well being situations affecting individuals with DS; and sources for well being professionals, together with checklists and communication suggestions for working with individuals with DS and different developmental disabilities.
WHY IT MATTERS
It’s estimated that about one in each 1,100 infants born in Australia will develop Down syndrome, which is without doubt one of the commonest chromosome problems on the earth.
In a media launch, Incapacity Companies Minister Don Punch stated the My Voice My Well being web site will empower households, carers and folks residing with DS with vital info and be a “great tool when visiting well being professionals”.
“Individuals with Down syndrome reside lengthy and fulfilling lives, with loads of alternatives to make their very own selections and stay independently. My Voice My Well being is a superb instance of how we will use info expertise to allow individuals with incapacity to stay their finest life,” he stated.
MARKET SNAPSHOT
Different international locations have additionally launched related digital sources to assist the well-being of individuals with DS. In the UK, the Down’s Syndrome Affiliation has developed the Well being Swap app to empower individuals with DS to make constructive way of life selections whereas enhancing their digital expertise.
In the US, a platform known as Down Syndrome Clinic to You offers up-to-date, personalised well being and wellness info to individuals with DS. It additionally assists caregivers and first care suppliers in giving evidence-based care within the absence of a specialist. It was developed by analysis and medical groups from the Down Syndrome Program and Lab of Laptop Science at Massachusetts Normal Hospital, a Harvard Medical Faculty-affiliated tutorial hospital.
