In the case of affected person advocacy, an enormous a part of the expertise is telling your story. Whether or not you’re sharing it on social media, in an interview, to a fellow help group attendee, or with somebody whom you simply met on the road, there’s loads of selections you must make!
What particulars ought to I share?
How can I condense this story?
How a lot medical info ought to I embrace?
Does this individual even know what my situation is?
Affected person Chief Jed Finley, who writes on AnkylosingSpondylitis.net and AxialSpondyloarthritis.net, has damaged down among the steps he took to create his “go to” story. As he states within the article: “You by no means know when somebody goes to ask, so you ought to be ready to share.” Learn his advice on “Preparing to Share” here.
