Thyroid Eye Disease 101 — TED/Graves’s Eye Disease

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Medically reviewed by Raymond Douglas, M.D., Ph.D., Cedars-Sinai

November 14-20, 2022 is Thyroid Eye Disease Awareness Week.

What’s thyroid eye illness (TED)?

Thyroid eye illness, or TED, is an autoimmune dysfunction that causes irritation within the eye muscle tissues, eyelids, tear glands and fatty tissues behind the attention. TED is typically known as Graves’ ophthalmopathy or Graves’ Eye Illness. It’s because TED most frequently happens as a part of Graves’ illness — an autoimmune situation that causes your immune system to assault the wholesome tissue of your thyroid, pores and skin and eyes.

If in case you have Graves’ illness, you’ve got an increased chance of creating thyroid eye illness. However TED is a uncommon illness and completely different from Graves’ illness and requires completely different remedy. Graves’ illness is the commonest reason behind hyperthyroidism, the place your physique produces an excessive amount of thyroid hormone. TED can even happen with hypothyroidism, the place your physique produces too little thyroid hormone, however that is a lot much less frequent. When thyroid hormone levels go up and down, it will probably make your TED signs worse. Thyroid eye illness is more common in women, however is usually extra extreme in males.

Phases of thyroid eye illness (TED)

There are two phases of TED: lively (additionally known as acute) and inactive (additionally known as continual). TED begins with an lively section the place you out of the blue start to expertise signs. This section can final from about 6 months to 2 years. Throughout the inactive section, a lot of the signs are likely to get higher, however that is solely short-term. Scar tissue can type within the eyelid and eye muscle throughout the inactive section.

What could make thyroid eye illness (TED) worse?

Sure elements can set off signs or trigger flare-ups.

  • Smoking
  • Fluctuating hormones, resembling in being pregnant
  • Stress
  • Eye trauma or surgical procedure
  • Different autoimmune situations resembling Sort 1 diabetes, lupus or rheumatoid arthritis
  • Steroid use

What are the signs of thyroid eye illness (TED)?

TED is a severe illness that may worsen over time. Most individuals who’ve a thyroid situation resembling Graves’ illness begin noticing eye signs throughout the first 6 months. These signs can include:

  • Dry, itching or gritty eyes
  • Eye tearing or redness
  • Ache behind the attention
  • Puffy pores and skin across the eyes or eyelid swelling
  • Double imaginative and prescient
  • Misaligned eyes or eyes that don’t work collectively
  • Bulging eyes (proptosis or exophthalmos)
  • Sensitivity to mild

You may additionally have extra extreme signs resembling not with the ability to transfer your eyes or eyelids nicely, not with the ability to fully shut your eyes or, in uncommon circumstances, lack of imaginative and prescient. This may have an effect on high quality of life as a result of it will probably have an effect on your means to drive, learn and work and might impression your emotional well-being.

How does thyroid eye illness (TED) get recognized?

Generally your HCP could make a analysis of TED based mostly in your signs alone. To get a analysis of thyroid eye illness, you have to a bodily examination, in addition to a watch examination. You may additionally have blood drawn to test the standing of your thyroid, together with imaginative and prescient assessments and eyelid measurements.

It’d take visits to multiple HCP to get a TED analysis. It’s possible you’ll be referred to see an ophthalmologist who’s a health care provider that makes a speciality of eye and imaginative and prescient issues, particularly a thyroid eye illness specialist with superior coaching and expertise treating TED. A referral to an endocrinologist, who’s a health care provider that treats hormone points, may additionally be really helpful that can assist you handle your thyroid situation.

Generally the signs of TED resembling dry, purple and irritated eyes may be mistaken for allergic reactions. Inform your HCP about all of your signs and medical historical past, so there’s not a delay in analysis.

Managing thyroid eye illness (TED) signs

Whereas TED isn’t thought of to be curable, there are therapies that may assist handle your signs. The longer that TED stays untreated, the extra seemingly severe harm can happen. Therapy is usually began within the acute section, however can nonetheless assist throughout the continual section.

At dwelling, you should utilize cool compresses or lubricating eye drops to provide your dry or irritated eyes some reduction. Sunglasses might help shield your eyes from the solar and wind. To assist with the swelling and strain close to or in your eyes, attempt sleeping along with your head elevated.

Sure medicines might help with eye swelling, resembling steroid medicines. There are additionally newer prescription infusions obtainable which will assist relieve signs.

In case your TED signs are extreme, your HCP may advocate you’ve got surgical procedure. Orbital decompression may be carried out in case you’re experiencing bulging eyes. This surgical procedure helps make the attention socket larger to lower the strain in your eyes. Eyelid surgery can be carried out in case your eyelids have pulled again an excessive amount of. This helps return them again to their regular place.

In case you are involved that you just may need thyroid eye illness, discuss along with your HCP. They’ll work with you to provide you with a remedy plan that may be just right for you.

This useful resource was created with assist from Horizon.

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