Well being Union not too long ago partnered with researchers on the College of Colorado to take a look at the distinctive position Affected person Leaders play in sharing health-related data with their social media followers. The findings from this analysis have been printed within the Journal of Medical Internet Research. Our Vice President of Neighborhood Growth, Julie Croner, not too long ago interviewed the lead creator, Dr. Erin Willis, PhD, MPH about her findings.
Within the interview, Dr. Willis discusses how she turned serious about on-line well being communities, and the way group members share data with one another. She shares how in her interviews with 26 “patient influencers,” she discovered in regards to the in depth group constructing and data sharing that occurs between the influencers and their followers, pushed by their “their very own expertise to share well being data in order that different sufferers had a greater expertise.” She believes “‘affected person influencers’ are an undervalued device for well being training and promotion.”
