We have been joined by panelists Olivia Salvo, Sarita Edwards, and Abigail Johnston as they mentioned the variations, challenges, and alternatives they encountered whereas advocating for a terminal analysis versus a continual situation. In the event you weren’t in a position to watch the panel reside, we suggest that you just take a look at the replay for helpful tricks to advocate for your self or a beloved one dwelling with a terminal situation.
Key takeaways
That is an emotional and deeply private subject, and all our panelists gave considerate, actionable, and passionate responses. The panelists talked in regards to the significance of getting open conversations with buddies and family members slightly than folks assuming they wish to be handled a sure means due to their situation. Sarita added, “Don’t let your concern and discomfort of your life preserve you from approaching me and asking questions.” We hope this candid dialog reminds our neighborhood members to proceed advocating for themselves, their family members, and different Well being Leaders.
In regards to the panelists
Olivia Salvo is a 22-year-old dwelling with Mitochondrial Illness and Vascular Ehlers Danlos Syndrome. She advocates for higher and earlier entry to palliative care and hospice and needs to tell folks in regards to the misconceptions about a majority of these care. As a terminally ailing affected person with different life-threatening illnesses, it’s necessary for her to concentrate on dwelling life to the fullest, and palliative care has allowed her to try this.
Sarita Edwards serves as CEO and President on the E.WE Basis, a 501(c)(3) healthcare advocacy group. She can also be the host of the Being Uncommon Podcast. Sarita started her efforts of advocacy, schooling, and public coverage after receiving a prenatal analysis of Edwards Syndrome, Full Trisomy 18 for her son Elijah. Because of the excessive mortality danger related to Edwards Syndrome, Sarita was not provided interventions, sources, or different healthcare options for her son.
Abigail Johnston works with Metavivor as a Peer to Peer Advocate, with Dwelling Past Breast Most cancers as a Hear My Voice Advocate, with After Breast Most cancers Prognosis, and he or she began her personal nonprofit, Join IV Authorized Companies, to recruit attorneys to do professional bono authorized work for Stage IV metastatic breast most cancers sufferers.
